Benefit Concert!!

My benefit concert is getting closer and closer. It is on November 14th! Tell everyone!!!! It is at studio 600, and i would LOVE to see all of my friends, family, community, and colleges out there to support and raise awareness for this horrible disease!!!!!

I just wanted to thank the students who are putting it on. You have no idea how much it means to me. Its is truly a blessing to know that so many out there are praying, and thinking of my family and I at such  a hard time. So, thank you. Its means more then you know, and I am truly in aww of how many have already said they are coming!

I just hope every one knows how much i love and appreciate the notes, letters, gifts, flowers, hot pads, jolly ranchers, lotions, stuffed animals, pj pants, and SO much more. It really makes my day. Since I have such a hard time with visitors, notes and stuff has helped me to keep positive and it always makes my day :) Thank you all for all of your love! I am so grateful.

Also, I know people have been asking and patiently waiting to buy shirts, and starting MONDAY, Shirts WILL be sold at the school during lunch time!!!!!! You can also contact me, if you don't go to the high school and are interested in a shirt. I will let you know how to get your shirt!!! I would love for everyone to wear it to the benefit concert so we can get a pictures of them on all my friends!!!!! :) Contact me (cell) 801-592-3907 or at my house 801-489-5412! I will let you know how to purchase the shirts through the blog or through us :) Thank you alll!!!!!

Just a small update of my past few weeks: I have had quite a few visits to the Emergency room. I've been 4 times in the last 2 and 1/2 weeks! It has been pretty rough. My gastroparesis seems to just get progressively worse, and although we thought the stomach feeding tube (GJ) would help minimize my pain crises, it hasn't. But, hopefully down the road it does. My POTS is still a big problem as well, but since I lay down most of the time, it is usually fine until i stand or sit up. My nausea is now through the roof. Sitting up for longer then a minute or two,  i get nauseated and dry heave. They are currently in the process of scheduling my second scope in the past month and a half. They are checking to see if they can make yet another diagnoses called EOS. I am hoping and Praying that it is not that. For now, just laying here in my usual spot, and watching lots of netflix, and trying (attempting) to do my school work.

Another random little paragraph, ITS MY BIRTHDAY ON MONDAY!!!!!! WOOOOHHOOOOO!!!! The big one eight :) Its a happy/sad birthday for me. Hopefully I'm well enough on my birthday to chew and spit a bite of pizza or cake or something. LOL!!! But, my dog was an early birthday present, and is more then what I could have ever asked for :) LOVE HIM! You all should be jealous, because he is THEE cutest thing out there.

Well, thanks for stopping by and reading. I am going to attempt to keep up on my blog and on my website which is being set up as we speak!

Thanks everyone,!!!! I am alive, and that's about all I am. . .I am hoping for good and positive changes to come, or just to have a miracle and get better. Keep praying for my family and I. We need ALL the prayers we can get. Many have asked how they can help, and donations are a big help. If you feel you would like to donate, there is donation buttons. Donation are very welcome and will NOT go unappreciated. Our medical bills are never ending.

ALSO, I'm in the process of scheduling an appointment at Colombus Ohio, to go see one of the 6 specialist in the world in my problem. The appointments are out, at least 6 months! CRazy!!!! Hope and pray i get in, and hope and pray i am even well enough to drive to the airport.

THANKS EVERYONE <3 LOVE ALL OF YOU :)